A Variety..." /> “Our Boys” concert – Boyle Today | Your News, Your Town | Local news for Boyle, County Roscommon

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Published on June 7th, 2014 | by BoyleToday.com

“Our Boys” concert

 A Variety Concert featuring an array of local artists will be held in St. Joseph’s Hall, Boyle tonight Saturday the 7th June at 8.30 p.m. in support of the Join our Boys Trust.  Local talent performing on the night includes: Bernie Flaherty & Donie O’Connor; Ann Conboy & Friends; Shannon Academy School of Irish Dancing; Keadue Group; Marc Egan & Tom McGlynn; Abbey Community College Group; Arlene Regan; Shannons from Ballinameen; Frankie Simon & Michael Harrington; Karen Carty & Martha Baker Kenny; Brendan Morris; Rory McDonnell and other artists.

A Raffle will take place on the night with exciting prizes on offer – one of which, sponsored by Kilronan Castle & Spa is for ‘one nights Bed & Breakfast for two including an evening meal in their elegant hotel. Your support for this fundraiser would be greatly appreciated.  For further information see www.joinourboys.org

 

 The Join Our Boys Trust was set up just over two months ago to support the Naughton family from Roscommon whose three boys were diagnosed with Duchenne Muscular Dystrophy (DMD).  A diagnosis of DMD is devastating. It is a 100% fatal, neuromuscular disease where life expectancy is late teens or early twenties.As the disease progresses, muscle tissue will experience wasting and will eventually be replaced by fat and fibrotic tissue. This will lead to extreme difficulties in walking and will eventually lead sufferers to being wheelchair dependant between the ages of eight and twelve. At present, there is no treatment and no cure.

The immediate purpose of the fundraising is to provide a purpose-built house for the family’s use. Indeed, one of the principles of the Trust is that all the money raised and the proposed house will remain in the ownership of the Trust but will be for the family’s use.

The Trust hope to raise 1.2 million and spread awareness about Duchenne Muscular Dystrophy and ultimately try to find a cure.

The people of County Roscommon and beyond are showing tremendous support for the family and the Trust. Many fundraising events have already taken place and plenty more are being planned. A monster draw, where the first prize is a car, has been launched and this is promising to be an outstanding success.

 

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